We have been coming home each night to sleep and then going back to the hospital. Now that Lily is on the floor we are permitted to stay the night with her. I have not done this so far. I feel so guilty. It's just that we have another child, and even though she is a teenager she still needs our attention as well. Not to mention her physical therapy appointments that are still three days a week. I must have been exhausted last night; I slept through my 1:30am pump and woke up extremely uncomfortable about 4:30am.
So, we called the hospital this morning after change of shift, typically the Doctors make their rounds about 6am or so. Dr. Dilustro was in and said that they are going to do another CT scan tomorrow morning. After the CT they will decide on what to do next, if all looks well/good she may be able to come home. If the fluid is not draining as he had hoped (we know that she is draining some on her own) then I'm sure that he will be keeping her and we will then discuss her shunting options. Due to the area of the cyst, he said that if there is complete failure from the fenestration that he did on December 26th then she would need two (2) shunts.
Please continue to pray for our sweet angel... that she will not need the shunts at all and her CSF is flowing/draining as it should.
This is the hardest thing that our family has ever endured. For those of you that know us personally know the hardships that we have endured over the years with Tori. Ken and I are SO BLESSED to have baby Lily in our lives. We know that God is in control, he already knows how this will turn out and he gives us strength to make it through.