Tuesday, January 6, 2009
I was able to spend the entire day with Lily today. I had to pull myself away tonight. I am now able to spend the night with her but have not been able to yet. Dr. Dilustro checked her this morning and her incision site is still dry, her head circumference is still 35.5. He wants to watch her for another 24-48 hours before he decides when she can come home. Once she comes home we will still need to watch her closely and measure her head. He said that he knows that she is draining but just doesn't know how much. We are hopeful that her body will adjust to the pressure and no shunt(s) will be needed.
I'll post more when I know more.