Tuesday, December 30, 2008

Today was a pretty quiet day. Lily did get upset before we made it up to the hospital and spilled about 20cc of CSF. When we arrived we were a little surprised by the amount. (Or the way that it looks in the bag) It is supposed to be a clear and straw in color. Her's was straw colored and red. Meaning there is blood in the fluid. We were a little concerned but the nurse assured us that everything was fine. (Easy for them to say..) So, Dr. Dilustro popped in and the first thing out of his mouth was, "Perfect, the drain is doing exactly what it should be doing." I asked him about the blood and he stated that it is the old blood in her ventricles coming out and that is good. So now the plan is to watch her and this for a couple of days. It will depend on what happens on what he will do next.

So, that is where we are. I miss holding her. But, I do get to feed her in her bed and change her diapers. :)

Well, I am off to plan out our dinners for the month of January and write up the grocery list so that Ken to do that first thing in the morning.

God Bless!

1 comment:

Stephanie said...


I can't imagine what you are going through, but thanks for sharing with all of us.

I look forward to reading about Lilly's journey and how things are going with her.

She is in my prayers nightly, as well as you, Ken and Tori!

I hope 2009 is a great year for all of you!

Take Care!